study registries

What are the Challenges in Maintaining Study Registries?

While study registries offer significant benefits, they also face challenges:
Data Quality: Ensuring the accuracy and completeness of data entered into registries is critical, requiring strict quality control measures.
Funding and Resources: Maintaining a study registry involves ongoing financial and human resources, which can be a barrier for some organizations.
Compliance: Researchers may not consistently register their studies, either due to lack of awareness or perceived burdens, which can affect the registry’s comprehensiveness.
Data Privacy: Balancing transparency with the protection of sensitive information is crucial, especially when dealing with proprietary or personal data.

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